Do you enjoy sleeping? I used to love it…in fact, I looked forward to it.
Now, I hate it. I feel like OSA has taken the pleasure out of it.
posted by:
Lee
offline Lee
Orlando
  • mc
    mc
    offline 58
    Lee...
    I feel similarly. It has become quite a chore for me and that has much to do with my personal decision to become a Cali legal medical cannabis patient - for me it simultaneously raises my level of tolerance for the contraption on my face while also helping me to get sleepier earlier (bad sleep patterns are leftover from a period of severe depression awhile back).

    I really enjoy falling asleep without the BiPap on but I hate how I feel when I wake up. I miss the ability to just fall asleep comfortably anywhere when I get tired and wake up feeling refreshed. It used to be that when I was tired, even a concrete slab felt like a nice bed.

    Now, when I wake up without using the BiPap, I feel beat up. Getting to sleep with the contraption on is a true ritual at best - many times, I get worked up and want to smash my resmed.

    Overall the BiPap helps quite significantly - but in broad strokes. I still feel like s--t when I get up in the morning and need to "unwind" from sleep which can take up to 1/2 hour. I still feel rather tired a lot but nothing like when I did not use it at all. If I get 5 or more hours, I don't have the deep sense of sleepiness that hits around 3-4 pm. 4 hours or less, and I will crash if given the chance.

    Don't get me wrong - it has saved my life and lifestyle. But its not been easy.

    Peace.
    MC
  • I hate sleep. I sleep too much, I'm sleepy all the time, sleep feels like the albatross around my neck. I do not enjoy spending so much time passed out. I've always felt this way about sleep. It makes me angry that I need so much sleep and it makes me angry when I haven't woken up.

    I'm grateful for my biPap, because it allows me to sleep less and feel less sleepy.
  • I look at sleep with mixed emotions. While I have NO problem using my CPAP and have a very well-fitting mask, I hate the "before bed" routine -- hooking up the equipment, making sure I have distilled water in the humidifier. And I take a lot of medication before I go to bed at night and then again when I wake up so I easily have a lengthy routine before bedtime. And no more joy to just crash on the sofa and snooze if I want a nap. No, I have to go hook up and use my CPAP or snoozing has no meaningful reason.

    I'm still sleeping way too much, at least in my opinion. I get 9 hours sleep at night and at least several days a week I still seem to crash around 3-4PM and need a nap. There have been times when my husband has called to let me know he's coming home from work and he's literally woken me up, 2 hours later!!

    I will forever sing the praises of CPAP therapy because it has given me a life back. But here I am after 2 years diagnosed and using treatment for OSA and I have to wonder -- is this as good as it gets?
    • Leah, I think you (as usual) nailed it: "I will forever sing the praises of CPAP therapy because it has given me a life back." It has given you A life back, just not YOURS.

      I am so much better than I was before, but I still have so much further to go. Part of it is that I am not 20 anymore (or 30 or 35 or 40 or 45...) and I have to realize that I am limited more than I was before. That doesn't mean I give up, but it does mean that to be pissed that I'm not 20 anymore is not productive.

      I had one semi-suffocating dream when I was off therapy because my machine croaked. If nothing else, the BiPAP prevents those. It's funny because I find them more frustrating than scary - but it's still not a good thing. My new machine is loud as heck and I sound like Darth Vader. Oh well...
  • Lee
    Lee
    offline 0
    There is no question that the bipap / cpap are worth using and I would never advocate not using it. My biggest motivating factor staying with it is the suffocating dreams.

    I guess what I am getting at (setting the ritual of the cpap a side), is that all I want to do is sleep. If I could sleep all day, I would. I agree with Leah, after 3 years of the bipap, is this all there is.

    I know the bloody machine is working; the few times I could not use it, I felt the difference, but damn, I would like to wake up one morning feeling refreshed and not like all I want to is go right back into bed. I don’t mean to bitch here and maybe this is the appropriate place to bitch. <shrug>

    The thought came to me when my wife and I had a small fight over me staying up until 4 or so in the morning for a few weeks in a row. I really could not explain it to her at the time of the disagreement. I love my wife and we have gone through a lot together. She is a stroke survivor at the age of 38. BTW: Stay away from Yazim or Yaz as it is now called. It is what caused my wife’s stroke. If you have any question, we have a ton of research on the drug.

    ANYway, then the other day it hit me, I hate sleep; just sleep in general. I so used to the bipap and the mask; neither have ever bothered me. I feel the same in the morning regardless if I get 4, 6, 8, 10, or 12 hours asleep. It does not make any difference.

    So, I told her that and she came back at me with that she hates it too because she does not get enough, between working on her MBA and her career.

    I guess I am looking for away to express what I am going through; to help her understand what I am dealing with. Thanks for your all your insights.
  • OK, I'm going to toss another log on the fire and add to the communal bitch-fest: Are we truly dealing with a "disability" here? Maybe medically and legally OSA wouldn't necessarily be labeled as a disability but it has so many ramifications to the quality of our lives.

    I still suffer from depression even though I'm on medication. I don't have lots of energy or motivation. Yes, I'm functional; but there's more to life than just being able to function in it. Are there days when I feel really good -- yes. But even with CPAP and faithfully wearing it for 9 hours a night I wake up exhausted and still wanting to go back to bed. Is this "normal" for us with OSA?

    I don't want to sound like I'm complaining. Believe me when I say that I truly know how blessed I am in SO many ways. But part of me still has to wonder, is this as good as it gets?
    • Lee
      Lee
      offline 0
      Leah, to your point is it a disability, my answer is yes. And, I am currently in a legal battle with Cigna’s Long Term Disability over it. Before I was diagnosed with OSA, I had a rash of health issues including what my doctors thought was depression. I swear the meds made all my other problems worse. I am not knocking them for people who are suffering from metal health issues. My son suffers from bouts of manic depression and without them, well I don’t want to think about that.

      I saw lots of doctors; all missing the OSA, and it was a psychiatrist who diagnosed the OSA within 5 minutes of my visit. At that time I was missing lots of work; so I went on Short Term Medical Leave. Hell, I paid for that insurance, why not take it. However, my company gave me a rash of sh!t. The kept tell me if I don’t return to work, I was going to lose my job, despite my doctor’s supporting the leave.

      So, I was force to hired an attorney and they backed off. He then handled, my long term disability, but last August, my two years were up and now he is trying to get me reinstated. Basically, all my doctors have told Cigna that I am not in any shape to hold down a full time job, much less my engineering job I had before the leave.

      Between my Neurophychiatrist and my Pulmonary Doctor’s testimony, my attorney feels we have a strong case to show that this is a disability. Sleep deprivation, a side effect of OSA, is serious and it can cause other serious health issues, including Type 2 Diabetes, heart desease and stroke if not treated properly.
      • OSA is definitely a disease. Without treatment I was severely depressed, fell asleep while driving, standing, sitting and eating. I was a complete a-hole to the people I love and didn't even know it. I will say, though, that my apnea was combined with hypo thyroid too.

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