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...I've been told sharing with a community I like is a good thing.
So...
I was diagnosed on Tuesday with thyroid cancer. But the prognosis is very good. It seems that I have the most common form and, amongst cancers, this type of thyroid cancer is one of the most survivable with excellent 10-30 year outlook. Even with common local metastatis, and the very rare distant metastasis, the prognosis still remains very good. I fall on the earlier half of mass size so I am currently in the 90-95% percentile for 30 year survival.
All those thyroid concerns you heard me express in an earlier thread culminated in a biopsy and the diagnosis.
Good things about all of this:
1. If I am a typical case, no chemo or aggresive radiation therapy is required. Typical treatment after surgery is to take a few cycles of radioactive iodine which specifically target only thyroid cells - wherever they may have ended up. So, beyond my surgery to remove my thyroid, I will only feel less than normal on the days I take my iodine pill at the beginning of each cycle (one pill per cycle). Sometimes, there is 24-48 hours of some nausea and fatigue but then things work out. I have to sequester myself for the first two days of each cycle anyway so I don't radiate anyone - esp kids and expectant mothers. For most, the surgery is the most traumatic.
2. Very few people actually die from this form of thyroid cancer. A friend of the family who is the head of pathology at a hospital in Los Angeles, and having been a pathologist for 45 years, says he personally has not seen a single patient with this form die from it. This isn't to presume no one does but the good prognosis is supported here.
3. I've decided to go ova/lactic veggie (the right way) to support my immune and recovery. Regardless of approach or philosophy, while there is disagreement on how meat may or may not contribute to cancer, most schools of thought seem to agree avoiding red meats and saturated fats is very good for recovery. I know myself well enough to know I need to go all the way or I will not go anywhere in the end. I already avoid diary for the most part as I don't tolerate dairy too well anyway and I already use only egg whites or egg beaters. So, just cutting out the meat.
4. The mass is actually making my trachea deviate - so, while it will not cure my apnea, it is likely it will improve and, at least, give me more comfortable positions to sleep with after recovery from surgery.
Honestly, I am sharing not because I expect any specific type of response but because this community seems to understand chronic illness more than most I am in. So, I thought I would share.
You may shower me with words of encouragement now - I promise I will soak it all in. :)
MC
So...
I was diagnosed on Tuesday with thyroid cancer. But the prognosis is very good. It seems that I have the most common form and, amongst cancers, this type of thyroid cancer is one of the most survivable with excellent 10-30 year outlook. Even with common local metastatis, and the very rare distant metastasis, the prognosis still remains very good. I fall on the earlier half of mass size so I am currently in the 90-95% percentile for 30 year survival.
All those thyroid concerns you heard me express in an earlier thread culminated in a biopsy and the diagnosis.
Good things about all of this:
1. If I am a typical case, no chemo or aggresive radiation therapy is required. Typical treatment after surgery is to take a few cycles of radioactive iodine which specifically target only thyroid cells - wherever they may have ended up. So, beyond my surgery to remove my thyroid, I will only feel less than normal on the days I take my iodine pill at the beginning of each cycle (one pill per cycle). Sometimes, there is 24-48 hours of some nausea and fatigue but then things work out. I have to sequester myself for the first two days of each cycle anyway so I don't radiate anyone - esp kids and expectant mothers. For most, the surgery is the most traumatic.
2. Very few people actually die from this form of thyroid cancer. A friend of the family who is the head of pathology at a hospital in Los Angeles, and having been a pathologist for 45 years, says he personally has not seen a single patient with this form die from it. This isn't to presume no one does but the good prognosis is supported here.
3. I've decided to go ova/lactic veggie (the right way) to support my immune and recovery. Regardless of approach or philosophy, while there is disagreement on how meat may or may not contribute to cancer, most schools of thought seem to agree avoiding red meats and saturated fats is very good for recovery. I know myself well enough to know I need to go all the way or I will not go anywhere in the end. I already avoid diary for the most part as I don't tolerate dairy too well anyway and I already use only egg whites or egg beaters. So, just cutting out the meat.
4. The mass is actually making my trachea deviate - so, while it will not cure my apnea, it is likely it will improve and, at least, give me more comfortable positions to sleep with after recovery from surgery.
Honestly, I am sharing not because I expect any specific type of response but because this community seems to understand chronic illness more than most I am in. So, I thought I would share.
You may shower me with words of encouragement now - I promise I will soak it all in. :)
MC
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Re: Was hesitating to bring this up but...
Thu, August 28, 2008 - 9:50 PMAlso...
Can someone refer me to that mask that does cover my mouth but uses nose pillows? I need find something that will allow me to use my BiPap after surgery when I will have this rather large wound up at least one side of my neck if not both. Right now, my strap would to right over it.
Thanks.
MC -
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Re: Was hesitating to bring this up but...
Fri, August 29, 2008 - 9:06 AMOh mc!!!!!!!! (And believe me, that is not the first word/phrase to come to my mind, but in light of more delicate sensibilities than mine, I did not post the word that came screaming to my mind.)
Well, my friend, to say that sucks is the understatement of understatements; however, I do agree that if you have to get tagged by the C-fairy, thyroid cancer is one of the "better" ones to get. We are just all so used to the C-word inspiring fear and terror that it's an automatic - or nearly - reaction. It sounds, though, my dear mc, that you are handling it well (yeah, I know), and that you have done your research and you have a good plan. KNOW without a doubt that however I can support you in this, I will do my level best.
I APPLAUD your decision to cut out the red meat. We are infused with so much synthetic crap - from hormones to antibiotics - as passive recipients that we don't know what all we're exposed to. It's true for everything, but for some reason, it just seems more evident with meat - perhaps that's my mammalian conscience speaking, who knows? And, for you, my dear, I might consider refraining from my favorite explanation of the PETA acronym (People Eating Tasty Animals). I'm an animal lover, but sometimes those folks get a little too full of themselves for my liking.
Anyhow, enough about me.
Let us know what you need, how you need it, etc. Have you told your family yet? That would be the conversation I'd dread because you have your own reactions and feelings to deal with, and then you'd have to deal with THEIRS. It's okay for you to be selfish and self-protective right now, dude. Actually, Mother Darla PRESCRIBES it. Don't make me come down there and administer it myself!!!
If you have time and interest, you might enjoy the series on AMC called "Breaking Bad." It's about a man with Stage 3A lung cancer who makes some very interesting decisions about his life in view of his diagnosis. Might be hard for you to watch, I'm not sure, but what I AM sure of is that it is DARKLY funny.
Sending you much, much love, my gentle friend,
D.
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Re: Was hesitating to bring this up but...
Fri, August 29, 2008 - 8:56 PMI am sad to hear you have to go through one more thing. Our thoughts and prayers go with you.
I believe the mask you are looking for is the Mirage Liberty Full Face with Nasal Pillows. The straps rap around the crown of your head. I had this mask for maybe a month. The plastic did not seem to be as strong as my other masks and broke after a month's use. Also, where the strap that snaps to the mask is very sharp when the strap is not snapped. I almost cut my face when I took the mask off in the middle of the night.
I prefer the Swift II. I have always used a full face masks, until the Swift II. I have not had an issue with my mouth opening in the middle of my sleep with this mask.
I have an extra one if you want it. It is still factory sealed.
Best of Luck with everything and let us know if you need anything.
Lee
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Re: Was hesitating to bring this up but...
Sat, August 30, 2008 - 8:43 AMMC,
Thanks for posting about what's going on in your life just now. Cancer is such a scary word to hear but I am glad you educated yourself about this kind and the percentages. You are so thorough. It sounds so great that you are changing your diet to help your body take care of itself. Seems like a high percentage of the radiology techs at the hospitals where I work get thyroid cancer. They are all doing well and working still. I hope this will just be a big scary blip on your radar when it's all said and done.
We are here for you in spirit at least..and if you need us to be here in any other way please let us know.
Hugs
Pam
Pam
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Re: Was hesitating to bring this up but...
Wed, September 24, 2008 - 2:27 PMMy love and prayers are with you! As a member of the "C" club myself, I was hoping this was one club you and I wouldn't be sharing.
Much love,
Leah
PS. Frankly, like Darla, I can't write what thoughts originally popped into my mind. It would be a string of expletives.
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Re: Was hesitating to bring this up but...
Tue, October 28, 2008 - 4:26 AMOMG...MC..how are you doing now...?
I have been bad..with all the tribe stuff..going on...I haven't checked in here of late..
I HOPE YOU ARE DOING OK...!!!
MY THOUGHTS SURROUND YOU...with HEALING ENERGY!!!
I hope you have support with friends and family around you...
sending you BIG HUGGZZZZ -
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Re: Was hesitating to bring this up but...
Tue, October 28, 2008 - 4:24 PMWell...
Just got back home a few hours ago. Feeling pretty beat up but alive and apparently surgery went well. I have staples from behind one ear to the other.
The first three days of recovery were absolute hell. But then it started to lighten up.
Coming of all sorts of narcs. Glad to be home with safe, gentle cannabis, mom's cooking first shower in a week and trying to just bide my time now.
I will post pics of my GNARLY wound soon. Right now, just trying to get settled and feel calm.
Thanks, Heron.
Mike -
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Re: Was hesitating to bring this up but...
Tue, October 28, 2008 - 4:58 PMWHEW...betcha..glad..THAT IS OVER WITH!
awaiting the pics..bet it's pretty gnarly..!!
rest.. that sounds like damn big surgery..!
enjoy mom's cookin..Hey what is she making?
...........sending you a big healing hug!!!
ps..when you have time and feel like it..fill us in what the doc has to say..too!!
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Re: Was hesitating to bring this up but...
Wed, October 29, 2008 - 3:41 PMHoly cow, mc, I didn't know the scar would be THAT cool!!! And just in time for Halloween!!!!!!! Good Lord, though, it sounds like they were trying to cut off your head. Yipe.
Do you have any of your thyroid left or is it all history? Write when you can, knowing that we are supporting you in prayer and good thoughts.
D.
And Heroness, WTH have you been (I know, the "Tribe Zone" which is NOT a good thing...)???? -
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Re: Was hesitating to bring this up but...
Sat, November 1, 2008 - 9:56 AMI've got pics!
For an explanation and disclaimer of sorts, visit my blog entry:
people.tribe.net/michaelch...e76270bb51
Once there, click on the link to my online album (but at your own risk!).
Peace.
MC -
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Re: Was hesitating to bring this up but...
Thu, November 6, 2008 - 10:44 PMWow, I am glad to hear that both your surgeries went well!!!!
Here is to a very speedy recovery.
Lee
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Re: Was hesitating to bring this up but...
Fri, November 7, 2008 - 6:09 PMWow, that was some surgery and that truly was some "gnarly" war wounds.
I am glad you came through it ok.
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Re: Was hesitating to bring this up but...
Mon, November 3, 2008 - 8:21 AMnot sure..WTH..I have been...
lost in the land of.....survival ..I surpose!
and geeeeeeezzzzzzzze..I hope they can sort out..Tribe..
cause..yep..that has been part of thee problem too~
also ..wondering how..LEAH is too?
she has been MIA ..too..with her health problems.. yikes
we gotta get this healing circle workin better...
Darla..HOW ARE YOU DOIN? -
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Re: Was hesitating to bring this up but...
Mon, November 3, 2008 - 2:37 PMHeroness,
I am alive and well and healing up from my recent surgery. Thankfully the tumor in my breast was NOT cancer this time!!! Yeah! So I'm still ten years cancer-free.
I am getting ready to attend a medieval camping trip called Southern Crusades and will be gone November 7-10 -- just me, my CPAP (and battery back-up system, LOL) and a few friends! I so need this trip!! -
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Re: Was hesitating to bring this up but...
Tue, November 4, 2008 - 4:29 AMWOWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWWW
Leah..I AM SO HAPPY FOR YOU!
You have been on my mind..
ENJOY..your camping trip.. you can breath easy nowwww~~~~~~
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