It's been a while since I last posted

topic posted Thu, May 31, 2007 - 9:03 PM by  Frances
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because I had nothing to say. At that time, I replied to Leah's post about camping with a CPAP and I was glad to see that you did get to go, Leah, and that everything worked out well.

I had a sleep study May '06 that I flunked, literally, because I had a panic attack and had to leave and then went on to have more panic attacks. Even after I got help for them, anxiety continued to be a low level problem for me and there was no way I was going to try another sleep study. Well, I'm still having problems and I'm fairly sure that I have at least mild sleep apnea and I've been more or less receptive to the idea of trying again but the problem was, where to go, since I would never go back to the original clinic. It didn't help that my husband was very ill and in the hospital this winter for almost 9 weeks; he had a compression fracture of the L1 vertebra compounded by 2 life-threatening infections, one of which was septicemia. I didn't know that anyone got septicemia any more!

Anyway, I have a sleep study booked for June 12 at a clinic that looks much better than the first one and I have talked to the doctor on my case and he seemed very sympathetic. I am still bothered by free-floating anxiety for which I may take lorazepam sublingually and was very happy to find that he would have no objection to my using it at the study, if necessary. That's good because I had fully intended to use it anyway.

Not too long ago, someone was complaining about members who never posted and I admit to that fault but I really had nothing to say. I'll post again after the study to tell you-all how it went. I'm not looking forward to it but I need to know what is going on because I'm not getting enough sleep and getting up and started in the morning has gotten very difficult. Just cross your fingers that I can pull it off without another panic attack.
posted by:
Frances
Canada
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  • Re: It's been a while since I last posted

    Thu, May 31, 2007 - 9:25 PM
    Frances! What a time you've had. I'm so sorry for your husband's illness and hope he's doing better, much better, now.

    I don't think any sleep study is, well, fun. I don't even think they are much more than (at best) tolerable. It sounds like you had a devil of a time. Do you know what triggered your panic attack? Was it being "wired" with all that stuff? I don't mean to cause any anxiety by asking those questions, and if it upsets you to talk, then don't. It's just that I am, by nature, a problem solver and want to help.

    June 12 is my wedding anniversary - it will be 8 years. In some ways it seems longer, in some ways shorter. June 12 is also a special day because a friend of mine delivered triplets (two girls, one boy - Ava, Aria and Aiden) and NONE of them needed to be in an incubator. Their mother is a strong and courageous woman who I admire tremendously. I tell you this because I do believe that June 12 is a very special day, and I also want to assure you of my prayers for you for your study.

    We're happy any time you post - but post at your own comfort level. You are always welcome, and I know I can say that because my friends here at the Sleep Apnea Corral have proven that they are just wonderful and accepting and caring.

    I guess it's only the best of the best that have sleep apnea!!!
  • Re: It's been a while since I last posted

    Fri, June 1, 2007 - 9:49 AM
    Good luck Frances..

    keep trying..

    i am..still not 100%..all night..usually rip the thing off my face..around 4 or 5am... but I keep trying..

    you will succeed on your sleep test..its so important ..if you can tolerate it... in the end...they will help you..with better sleep..

    worth what you have to go thru.. to succeed ...!

    let us konw how you make out...

    looking forward to hearing from you again!
  • mc
    mc
    offline 63

    Re: It's been a while since I last posted

    Fri, June 1, 2007 - 12:34 PM
    Frances...
    More power to you and good luck on the upcoming sleep study.

    Yeah...I am glad to your doctor is ok with your anxiety meds. I too have had panic attacks and anxiety. I don't want to presume anything here and I am no doctor but...I am hoping that if the study works out, and the apnea is confirmed and treatment begins, that some of your anxiety will naturally go away with better sleep. Anxiety, depression, obsessive/compulsive disorder all have similar roots and can be exacerbated or even partly caused by sleep deprivation.

    So glad you are getting another sleep study. And we understand why you had to bail on the last one - especially with the getup for sleep studies - it gets pretty complicated. Good luck, Frances.

    MC
    • Re: It's been a while since I last posted

      Fri, June 1, 2007 - 9:05 PM
      Thanks for all your supportive replies.

      The anxiety simply arose out of nowhere about a year ago but it hadn't bothered me too much by the time I did the sleep study. When I walked into the clinic that night I took an instant dislike to the place but felt I had to stay since I had made the commitment. The room I had was very small and it started out quite cool which suited me but got warmer over time, partly because there was an electronic device right beside the bed which was giving off a lot heat, and light too. And the gadget under my nose (a thermistor?) wouldn't stay in place when I tried to lie on my side which is how I prefer to sleep, the oxygen monitor was on the upper hand and made it very awkward to adjust my pillows, not to mention the thermistor, and all in all I was very uncomfortable. I did fall asleep for less than an hour but when I woke up I had to go to the bathroom and after I did I just couldn't go back into that bed. The technician was very correct but distant and made no effort to dissuade me which he might have been able to do because I try to be a responsible person. I felt very badly to have failed so miserably and over the next week I was very tense and then the panic attacks began. Luckily I had a psychiatrist that I could go to for help so I phoned his office and he started me on mirtazipine which is supposed to good for anxiety and also for helping one sleep. He also gave me lorazepam sublingual for difficult moments. The 2 drugs have worked quite well but I still have some anxiety at odd moments.

      Having been through it once, I am quite sure I can stay the night but I am very unsure I will be able to sleep. Actually, 2 lorazepam will put me out but not necessarily for the whole time and I will almost certainly have to go to the bathroom sooner or later which won't help. So now you know all the details. I've been reading the ASAA Forums for quite a while so I know I'm not alone in having a difficult sleep study. The sleep clinics always advertise that most of their patients manage to sleep quite well but I'm dubious of that and, in any case, 51% is most, I guess, but that still leaves 49% with problems.

      I want to say hello to Pam who I am sure has recently posted on the ASAA Forum. I'm the same Frances that posts there. And BTW, Pam is my daughter's name - well, it's Pamela which I assume is your name too.
      • Re: It's been a while since I last posted

        Sun, June 3, 2007 - 10:51 AM
        Hi Francis!

        I post under DoesThisCPAPMakeMeLookFat on the forums so I do believe it's me. NIce to see you post about the issues you have been having. I am so glad to see you post. I think a lot more people have issues than admit. The more we talk about it, the more we can get help for it and the more they can adjust how things are done so that real people like us can benefit from them.

        I remember that I wanted to be able to watch TV until I got sleepy when I was getting my sleep study. That's my practice at home. No way. Lights out when the tech said so. There I was in a pitch black room knowing that someone was watching me on camera and the monitor was clicking away. I was just lying there willing my bladder not to fill ...hoping against hope I would fall asleep. I had called my son and pleaded with him to bring me the pillow I had forgotten. He didn't, he wasn't at home and didn't feel like he could go home and get it in time for me. I know that I just laid there for hours wide awake..I pictured my EEG tracing all over the place. I decided to pretend I was asleep and maybe my body would somehow believe it. Next thing I knew the tech was turning on the light and calling me by my mom's name (hardly anyone calls me 'Mrs' anybody lol) and before I had a chance to orient myself here comes the CPAP over my face. I asked her what time it was..she said she didn't know. My eyes must have gotten wide because she kept saying 'just calm down and breathe'. And so I tried to..and again I am wide awake.. for what must have been hours. I finally fell asleep and there she is again. The object of my sleep deprivation telling me that she hopes I am not late for work but that since I didn't fall asleep until about 6am, she let me sleep in so we could complete the study. It was now 8am.

        I just wanted out, please show me to the showers so I can get this cement out of my hair. Oh, ma'am we don't have showers here. We do have one bathroom that everyone shares. Nice...I will drive myself home and hope I don't get a ticket on the way home. I looked like Phyliss Diller lol...Oh how I wanted Starbucks but I didn't dare stop in looking as I did.

        The good news was that I made it through. I knew that if I got through it, that it was only one night and I would have help for the rest of my life. I know I am strong and that even if she couldn't support me, I could try to support myself through it. It took so many tools though. I totally could see why so many people couldn't make it through the night. I almost bailed so many times. I seriously doubted she got enough info for a full study since I didn't think I had slept. They found I had moderate sleep apnea. I got my CPAP and am resting pretty well these days.

        I also wanted to tell you, Francis..there are home studies you can do if the study at the Sleep Center doesn't work. I have read about some where they wire ya up and send you home to sleep and the you come back and get all the gadgets taken off the next day. Maybe you can ask them about that if this doesn't work out for you.

        I know your doctor is working with you to prepare. Kudos to you for being willing to try it again and I know you will do your best to make this one successful.


        All my good energry and sleep faerie dust to you on your next sleep study try!

        Pam
        DoesThisCPAPMakeMeLookFat
  • Re: It's been a while since I last posted

    Sat, June 2, 2007 - 9:58 PM
    Dear Frances,

    I also wish you well on your sleep study on June 12th and belive with all my heart that you'll be able to get the help and diagnosis you need for you. And yes, I have indeed gone camping with my CPAP; twice! I have another camping trip planned the end of July and can only go because one of my friends has an "silent" electric generator that he brings along just so I can power up my battery back-up unit for my CPAP during the day. I participate in medieval re-enanctment and the campsites are rather primitive, certainly there is no electrical power for my CPAP. But this gracious gentleman in our group brings a generator for me to use. Without his assistance, my back-up battery would not last for more than 2 night's use.

    We're all here for you Frances and send our support. You're never alone and are always welcome here. Please keep us posted, OK?

    Love,
    Leah
  • Re: It's been a while since I last posted

    Sun, June 10, 2007 - 11:20 AM
    Hi Frances,

    I know your test is coming up in two days. My thoughts are with you. Stay strong! Remember it's just one night and then they will have the info they need to help you!

    We will be here for you. Please, let us know how it goes.

    Hugs..our thoughts are with you

    Pam
    • Re: It's been a while since I last posted

      Sun, June 10, 2007 - 11:59 AM
      I'm with Pam. Frances, we're all behind you as your day comes up. If it helps, think of us all hooked up at the same time - we'd look like something from Top Gun, or at the very least rejects from NASA!!!

      I feel like I have to confess something (and I know that others share this "badness") but I just took my BiPAP apart (OMG, I just thought - MC is our CPAPA/BiPAPA) and may I just say ick? It's been way too long since I gave it a proper cleaning. (Gee, wonder why I can't get over this cold?) Do it for yourselves and your optimum health folks. It doesn't take so long and it's SO worth it. Yeah, it'll probably be another 10 years before I do it again (jk) but thought that I'd get preachy with yas.

      On another note, I am wanting to look into an exercise program offered at a local hospital for the "not quite ready for the thong" set (i.e. meat market gyms). They work with you while you are there, and it's a pay as you go thing that I think is INCREDIBLY reasonable - $10 per visit. I'm hoping to get there on Tuesday for a visit. I have already had my doc sign off on my participation. I'm excited, but I HATE exercise...it's just that I am getting to an age where I have to realize that it's no longer optional. I have plans on going to Ireland when I am 50 (in 3 years) and I don't want my fat ass crammed into a size 2 seat for 10 hours. Also, I want to have a better quality of life - I want to be able to see stuff in Ireland, and those people are true believers in stairs!

      Sorry for the hijack. Seriously, Frances, if you can think of us there with you (and it brings you comfort) please do. When I used to have severe nightmares, I would often think of someone I loved sitting in a chair beside my bed. It helped.

      Best to you, and joining in on the hugfest,

      Darla
      • Re: It's been a while since I last posted

        Mon, June 11, 2007 - 7:23 PM
        It's Monday evening and I'm somewhere between excited and panic stricken. I did a fairly good job of ignoring the study until today but this morning I started to panic. I took a lorazepam which helped a lot until now and I think I'll need to take another one when I go to bed.

        I really want this to go well and to sleep long enough to show what's going on. I have the strongest feeling that my sleep is at its worst late in the night. I think I can get to sleep okay but I'm a bit worried about how long I can stay asleep and whether I can go back to sleep after the inevitable trip to the bathroom. I'll try to limit my intake tomorrow evening but if I need to take a drink, I need to take a drink. Of water, that is.

        Anyway, I got out the list from the last time and checked it over and, aside from everything else, I will be taking my 2 pillows.

        So, thank you for your support and I will certainly report how it went as soon as I can.

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